Stim The What? An Origin Story

If comic books have taught us anything, besides the fact that not everyone can pull off spandex, it’s that everyone, hero or villain, has an origin story. I don’t think it’s a coincidence that the majority of these characters come into their powers, weaknesses, and world views through some sort of trauma. Bruce Wayne becomes Batman after his parents are killed in front of him. Magneto survived the Holocaust and because of that, makes it his mission to be the aggressor so he would never have to experience being oppressed again. Good guys and Bad guys are defined by how they handle trauma, and that’s what makes comics so universally liked. Ten people could be in the exact same situation, and they would handle it ten different ways. I relate a lot to comic books, they make a lot of sense to me. I think that everyone has an origin story, whether they’re a hero, a villain, or an extra. While I’m likely an extra in the grand scheme of the world, I’d like to think that I’m the hero in my own origin story; and I’d like to tell it to you. In the interest of time and attention span, I’m not going to start at the beginning. I think I’ll start not at the beginning of my life, but at the beginning of where I am now. Picture it: New York, 2014.

Our story begins in an apartment in the Hudson Valley, in New York. See the person sitting on the couch covered in cats? That’s me. And to be honest, I’m in a pretty rough place. I’m tired, and confused, and lonely, with no direction, and very little hope that things will get better. I haven’t held a job in several years (future me wishes that I can create a wormhole and leave myself a note to google Autistic Burnout), and it’s weighing on my self-esteem. Even though the estrangement from my parents was my choice, I am still missing the idea of them, and while my in-laws are nice, they still don’t feel like family yet. At 26, most of my high school and college friends have moved on or moved away, and since I lack the small talk gene, I haven’t really made any new ones. And on top of all of this, I’ve developed a chronic illness that frequently leaves me couch bound. I love my wife and I love my cats, but I’m isolated and unsure how to resume living my life. Also, I’m starting to have a strange niggling feeling about my body that I can’t place (spoilers: Dysphoria!). So to sum it up, I hate my life, I hate my body, and I hate everyone else because I can’t have what they have. Hm. Now that I write it out, I’m definitely started to sound more like a villain. Guess we’ll just have to keep moving forward and see what happens.

The more miserable I get, the more I start to slide back into old behaviors. Self-Harm, Food Restriction, and Intense amounts of exercise seem more and more like valid ways to deal with my problems. My brain sees these as the acts of a hero, I’m hurting myself instead of hurting anyone else. Because c’mon, everyone knows that heroes are all about self-sacrifice. And besides, doing these things make me feel better. A part of me knows this isn’t a good excuse, but it’s easy enough to silence that part. So what if my hair is falling out and I’m covered in bruises? I no longer cared that I couldn’t live the life I wanted because I had a life of counting and pacing and ignoring that fact that I was different. Also, my boobs went away, which mostly solved the dysphoria issue. Win win. Soon to be lose lose. Lose because I had a brief glimpse of what was actually happening. I tried to suppress my inner villain and I quickly learned that I couldn’t. So I did the hardest thing, the truly heroic thing. I asked for help.

In eating disorder treatment programs things are often presented as very black and white. You are good, your Eating Disorder is bad. Good, bad, hero, villain, these are gross simplifications of mental illness, and of life in general. At this point in my life, I knew what Autism was. How I had never considered it might apply to me, is still kind of a mystery. This is relevant because my autistic traits were looked on as being very negative, by the staff at my first treatment center. My food issues were me being stubborn, my poor social skills were often got me labelled as aggressive. My intolerance of change made them tell me over and over that I clearly wasn’t ready for recovery. None of these things were true. I was there for almost a year. Eventually we came to a mutual agreement that I needed more “complex” care, and that I shouldn’t come back. I consider what happened after that to land me solidly in the hero category. I could have given up. I could have said screw this, clearly I am not meant for recovery, I’m done. But I didn’t. I accepted change, I was flexible. I drove 800 miles, 800 miles from my wife and my cats (remember them?) and I started again. At a place who worked with me, who were able to see my behaviors as something more than stubborn, and staff who knew what Autism looked like, and how to work with it. Now, I wasn’t given special treatment (that would have been a total villain move), but they provided me with tools that gave me the best shot at recovery.

“I’m just a soul whose intentions are good”. I’m in recovery. You probably guessed that though. I still think that I fall into the morally gray area when it comes to my Autism and my Eating disorder. I’m stable, but sometimes when I’m in distress, self-harm behaviors pop up. I follow my meal plan, but occasionally I fall into the hole of routines and textures and sameness and I don’t follow it as well as I should. The correlation between Anorexia and Autism is high, although no one knows why. The Correlation between ARFID and Autism is even higher. When I started this blog, I called it Stim the Line, because I often feel like I’m walking the line between Anorexia and Autism, that most members of my team know about Eating Disorders or Autism, but not both. I wanted a place to examine that line, and to connect with others who walked similar ones. I may be a hero, but I know now that Autism is not a villain. Neither is my Eating Disorder, although falls more into the trope of ‘villain but for a good reason’. Both the Eating Disorder and the Autism influence who I am, and I’m still finding a way to take the good influence and leave the bad ones. I’ll probably be doing that for the rest of my life. But it’s my life, and I’m working to make it into something that I’m satisfied with, and maybe even proud of. And that’s why I’m a hero.

2 thoughts on “Stim The What? An Origin Story

  1. Im not sure how I stumbled onto your blog, but I did and was immediately sucked in. I have a 12 year old ASD son and I am constantly trying to understand him but also be his parent and guide and lead him into adulthood. I have been very concerned about his diet for many years (he will only eat approximate 10 foods – none of which are good and healthy) he is very small and recently accepted into a study for growth homone to help him grow. His endocronolgist said he is the typical weight of a full grown 15 year old but his body is the size of a 8-9 year old and in order to stay with in the study criteria he can not gain any more weight for a period of time (still yet ot be deterimind). This coupled with his constant tummy pain from being constipated and his crying and begging for my help when it hurts (and it hurts due to his diet – the food he eats is hard to digest and in turn hard to poop out) sent me on a quest to find a food therapist who might be able to help us add some foods to his list of acceptable foods. So in this search (just 2 days ago) I stumbled on your blog and have soaked up every word, every thought as if it were my son talking to me. The picking glue off your skin – he does that all the time, I even caught him once covering his entire belly with glue and letting it dry to pick it off (I think the goal is for it not to break – one giant piece of dried glue). Im geting way off track, but I am worried for his health, he wont try new foods at all. He is somehow scared of the foods. We just lost our health insurance so if I do find a food therapist Im not sure how we will pay for it, but I would move heaven and earth to help him (help his tummy not to hurt, help him not gain weight so he can stay in the growth hormone study, help him not to be afraid, and help him have a good nutritional diet). If you can tell me anything that has worked for you. Please, Please keep up this blog, it is amazing (and entertaiing). Im not sure if it is safe to leave my e-mail on this site or not, so Im not sure how you will ever respond to me. Maybe in one of your up coming blogs. Thanks for what you are doing and who you are!

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s